"Sometimes being a father isn't what it was meant to be... It's hard to describe the very moment when you first comprehend that something significant is wrong with your child-that they have a major illness or disability, or that they are going to die. In that moment, you realize there has not been a mistake, it is your child, and nothing can be done about it. It is only a second in time, but it needs so much longer to explain..." In this book Charles and Joanne Hewlett share honestly about parenthood dominated by sickness, disability, suffering, death and grief. Their strong Christian faith gives them hope, but the pain and the misunderstanding and the struggle still has to be lived, one day at a time. This gritty book is essential reading for all carers, nurses, counsellors and others who support such families with disabled children.